Who created RareNavigator?
RareNavigator is brought to you by the
Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease
, co-chaired by Takeda, Microsoft and EURORDIS. This multidisciplinary group of international experts are supporting pilot programs to address barriers in rare disease diagnosis with the ultimate goal of improving the lives of children. The Global Commission provides links to patient and clinical resources, a calendar of events in the rare disease community, member news and updates relevant to the diagnostic journey.
Today, it can take an average of five years to get an accurate diagnosis of a rare disease, even in countries with sophisticated health systems.vi,vii In 2018, Takeda, Microsoft and EURORDIS-Rare Diseases Europe joined forces to launch the Global Commission and bring the rare disease and technology communities together to help address this problem. The goal of the Global Commission is to inspire concerted action and mobilize diverse actors – within and outside the health field – to work collaboratively toward a shared ambition.
RareNavigator was created by the Global Commission.