The Mighty is a digital health community created to empower and connect people facing health challenges and disabilities. With 2 million registered users, The Mighty offers an online community for people facing health challenges and the people who care for them.
NORD is a patient advocacy organization committed to supporting individuals with rare diseases and the organizations that serve them. NORD offers parents free webinars, fact sheets and other educational materials on rare disease, as well as Patient Assistance Programs and a rare disease database.
RAN, as part of National Organization for Rare Disorders (NORD), is a leading advocacy network working to improve the lives of the millions of Americans living with a rare disease. While mainly working at the state level, RAN filters information up to NORD’s national federal policy team to help address issues of national concern.
The UDN is the leading clinical research study for undiagnosed patients. Funded by the National Institutes of Health (NIH) Common Fund, the study bridges the gap between clinical care and research by bringing together experts from around the country to seek diagnoses for the most complex undiagnosed cases.